COVID-19
In the light of the COVID-19 pandemic we have taken urgent action to collate useful guidance and resources related to research ethics.
General guidance
- Nuffield Council on Bioethics (2020) Ethics in the research response to COVID-19, Webinar recording
- Public Health Emergency Preparedness and Response Ethics Network (PHEPREN) (2020) Why should ethics be front and centre to the response to COVID-19. Is it? Webinar recording
- WHO (2020) Ethical standards for research during public health emergencies: Distilling existing guidance to support COVID-19 R&D, Brief
- PAHO (2020) Ethics guidance on issues raised by the novel coronavirus disease (COVID-19) pandemic, Brief
- Nuffield Council on Bioethics (2020) Ethical considerations in responding to the COVID-19 pandemic, Rapid Briefing
- Food and Drug Administration (2020) FDA Guidance on Conduct of Clinical Trials of Medical Products during COVID-19 Pandemic, Guidance for Industry, Investigators, and Institutional Review Boards
- Mutenherwa F (2020) Ethical issues in managing the current COVID-19 pandemic, Sage Journal Blog
- Slim H (2020) This age of COVID-19 demands new emergency ethics, The New Humanitarian
- AMA Journal of Ethics (2020) Ethics Talk: COVID-19 Pandemic Response, Podcast
- Venkatapuram S (2020) COVID-19 and the Global Ethics Freefall, The Hastings Center Blog
- Gostin LO et al. (2020) Responding to COVID‐19: How to Navigate a Public Health Emergency Legally and Ethically, Hastings Center Report
- WHO (2007) Ethical considerations in developing a public health response to pandemic influenza, WHO
- Klass N et al. (2019) Ethics Guidance for the Public Health Containment of Serious Infectious Disease Outbreaks in Low-Income Settings: Lessons from Ebola, Johns Hopkins Berman Institute of Bioethics/Wellcome Trust
- National Collaborating Center for Determinants of Health (2020) Ethical foundations of health equity: A curated list, Brief
- Steinert JI, Atika Nyarige D, Jacobi M, et al (2021) A systematic review on ethical challenges of ‘field’ research in low-income and middle-income countries: respect, justice and beneficence for research staff? BMJ Global Health
- Pratt, B. “Sharing power in global health research: An ethical toolkit for designing priority-setting processes that meaningfully include communities.” International Journal for Equity in Health
- Pratt B. Research for Health Justice: an ethical framework linking global health research to health equity, BMJ Global Health (2021).
Social justice
Kelly M. et al. (2020) An appeal for practical social justice in the COVID-19 global response in low-income and middle-income countries, Lancet Global Health 2020
Health systems strengthening
- Gopichandran V and Subramaniam S (2020) Response to Covid-19: An ethical imperative to build a resilient health system in India, Indian Journal of Medical Ethics
- O’Donnell M and Rick S (2020) A Gender Lens on COVID-19: Investing in Nurses and Other Frontline Health Workers to Improve Health Systems, Center for Global Development Blog
- Gopichandran V (2020) Clinical ethics during the Covid-19 pandemic: Missing the trees for the forest, Indian Journal of Medical Ethics
Preparedness
The George Institute India (2020) COVID-19 Preparedness guidance/checklist for rural Primary Health Care/Community Health settings in India, Policy Paper
Care and resource rationing
- Archard D (2020) Hard choices at the frontline, Nuffield Council on Bioethics Blog
- Emanuel EJ et al (2020) Fair Allocation of Scarce Medical Resources in the Time of Covid-19, New England Journal of Medicine
- Wong A (2020) I’m disabled and need a ventilator to live. Am I expendable during this pandemic? Vox News
- Godfrey E (2020) Americans With Disabilities Are Terrified, The Atlantic
- Savin K and Guidry-Grimes L (2020) Confronting Disability Discrimination During the Pandemic, The Hastings Center
- Stramondo J (2020) COVID-19 Triage and Disability: What NOT To Do, Bioethics
- Kukla E (2020) My Life Is More ‘Disposable’ During This Pandemic, New York Times
- Moodley K (2020) Tough choices about who gets ICU access: the ethical principles guiding South Africa, The Conversation
- Bradley J (2020) In Scramble for Coronavirus Supplies, Rich Countries Push Poor Aside, New York Times
Emergency powers
Coggon J (2020) Beyond liberty: social values and public health ethics in responses to COVID-19, Blog
Health care worker wellbeing
- Zhou V (2020) The needs of female medical workers overlooked in coronavirus fight, advocates say, Inkstone
- Cole-King A (2020) Wellbeing for HCWs during COVID19, blog
- PES Women (2020) Women are on the front line of the corona-crisis, yet gender-issues are being ignored, PES Women
- Editorial (2020) COVID-19: protecting health-care workers, The Lancet
Gender
- Peterman A et al (2020) Remote data collection on violence against women during COVID-19: A conversation with experts on ethics, measurement and research priorities, UNICEF website
- Dartnall E and Bates-Jefferys E (2020) Considerations for Doing Intimate Partner Violence Research in the Time of Coronavirus, Innovations for Poverty Action website
- Filipová L et al (2020) Pandemics Are Not Gender-Neutral, Gender Analysis Can Improve Response To Disease Outbreaks, United Nations Institute for Disarmament Research
- O’Donnell (2020) Playing the Long Game: How a Gender Lens Can Mitigate Harm Caused by Pandemics, Center for Global Development Blog
- Willmer G (2020) ‘Gender blind’ coronavirus policies could hinder disease fight, scidev.net
- UNICEF (2020) Five Actions for Gender Equality in the Coronavirus Disease (COVID-19) Response: Technical Note
Quarantine and other mandatory measures
- Stern M and Markel H (2020) Pandemics: The Ethics of Mandatory and Voluntary Interventions, The Hastings Center Bioethics Briefing
- Priyadarshini S (2020) Stigma, distancing in slums may impede India’s coronavirus fight, Nature India
Clinical trials
- WHO (2020) Working with Community Advisory Boards for COVID-19 related clinical studies, WHO Task Force on Good Participatory Practices in Emerging Pathogens (GPP-EP)
- WHO (2020) R&D Good Participatory Practice for COVID-19 clinical trials: a toolbox, prepared by Dr Catherine Hankins
- Mumba N et al. (2020) Working with Community Advisory Boards/Groups to support community engagement in clinical research on COVID-19, RinGs brief
- Mbuagbaw L et al. (2017) Considerations and guidance in designing equity-relevant clinical trials, International Journal for Equity and Health
- Edwards KM and Kochhar S (2020) Ethics of Conducting Clinical Research in an Outbreak Setting, Annual Review of Virology
- French doctor apologizes for ‘Africa’ coronavirus test idea, Deutsche Welle
- Coronavirus: Africa will not be testing ground for vaccine, says WHO, BBC News
- Vaccine Advocacy Resource Group (2020) Conduct of COVID-19 related vaccine research that meets ethical standards in Africa
- Natnayas E et al. (2020) Rolling out mass hydroxychloroquine prophylaxis for covid-19 in India’s slums risks eroding public trust, BMJOpinion
Guidance for funders
SOAS (2020) An Online Discussion on COVID-19, International Research Challenges and What Funders & Institutions Can Do to Facilitate, Webinar
recording
Decolonization
Caesar A. Atuire & Olivia U. Rutazibwa (2021) – An African Reading of the COVID-19 Pandemic and the Stakes of Decolonization