This paper discusses health policy and systems research in complex and rapidly changing contexts. It focuses on ethical issues at stake for researchers working with government policy makers to provide evidence to inform major health systems change at scale, particularly when the dynamic nature of the context and ongoing challenges to the health system can […]
Increased global sharing of public health research data has potential to advance scientific progress but may present challenges to the interests of research stakeholders, particularly in low-to-middle income countries. Policies for data sharing should be responsive to public views, but there is little evidence of the systematic study of these from low-income countries. This qualitative […]
There is increasing recognition of the importance of sharing research data within the international scientific community, but also of the ethical and social challenges this presents, particularly in the context of structural inequities and varied capacity in international research. Public involvement is essential to building locally responsive research policies, including on data sharing, but little […]
Consent and community engagement (CE) in health research are two aspects of a single concern-that research is carried out in a respectful manner where social value is maximized. There are important overlaps and interdependencies between consent and CE; for example, CE can provide insights into how best to tailor consent to context and can be […]
Hyder, A.A. et al. (2014) Ethical review of health systems research in low and middle income countries: a conceptual exploration American Journal of Bioethics. 14(2): 28-37 Hyder and colleagues provide a framework to begin to think about ethics in health systems research. They prompt us to consider eight different areas: (1) the nature of intervention; (2) types of […]
Hyder, A.A. et al. (2014) The ethics of health systems research in low- and middle-income countries: A call to action. Global Public Health. 9(9): 1008-1022 This article draws on learning from a two-day workshop on the ethics of health systems research in low- and middle-income countries. The article explores emerging ethical issues such as units of […]
This issue of Developing World Bioethics includes a collection of papers on intermediary staff and volunteers working at the interface between research institutions and researchers, and the communities from which research participants are recruited. ‘Field worker’ – a short hand commonly used in many research settings – refers here to those whose main role is […]
Molyneux C, Goudge J, Russell S, Chuma J, Gumede T and Gilson L (2009) Conducting health-related social science research in low income settings: ethical dilemmas faced in Kenya and South Africa, Journal of International Development Volume 21, Issue 2 The value of the social sciences is increasingly recognised in health services and clinical research, contributing to […]